Before Huntington’s Disease I played around with sports. I haven’t been able to run in almost a decade. As of 2019, I’m having trouble with escalators, eating, talking, thinking, and sometimes walking. I have some chorea.
When I found out I had HD, I really wanted a first-person account. I found stories on testing, family dynamics, and pre-symptomatic life. Most writing about symptomatic HD patients came from caregivers and family.
While I’m not a writer, I’m making a record of my HD progression, symptoms, experiments, and hacks. I do this on the borrowed time when I’m coherent. Dedicated to my family’s next generation, status unknown, with love.
